Carol Lees learned she had Gaucher disease when still a teenager. The disease enlarges the spleen and liver and weakens the bones. Its victims worldwide are fewer than 10,000. It can cause tremendous discomfort, and without treatment, is fatal.
Until 1991, there was no treatment for the disease. When Lees first heard of a new drug, she hoped her life would change. It has. But she still endures tremendous pain, and today has a whole new set of worries.
Guests:
Carol Lees is a musician, writer, and once ran Madonna’s production company. She was diagnosed with Gaucher disease when she was 19.













